Wednesday 3 November 2010

Baby post-mortem delay criticised

Holding a baby's handMore than 6,500 UK babies are stillborn or die shortly after birth each year

Thousands of parents are missing out on the chance to discover why their baby died during pregnancy or shortly after birth, say campaigners.

They say that although post-mortem examinations are usually offered, a combination of red tape and long waits mean that most parents say no.

The Royal College of Pathologists and charity Sands is calling for more government money to improve services.

More than 6,500 UK babies are stillborn or die shortly after birth each year.

While some of these cases are explained, many are not and hospitals can offer post-mortem examinations.

Unlike a coroner's post-mortem examination, parents have the right to refuse an examination.

Sands, which offers support to families who have suffered a stillbirth, says that far too few examinations are being carried out.

In 9% of cases, according to official figures, a post-mortem examination is never offered and in total 61% of perinatal deaths do not lead to one.

Case study

In 2008, Helen Thompson and her partner Steve chose a post-mortem examination after their baby, Jack, died in the womb at 35 weeks.

Although a harrowing experience, the results helped doctors look after Helen during her next pregnancy, she said. "At the time, we wanted answers so much - we definitely wanted to know."

There was a three-week wait for the results of the post-mortem examination. Helen said: "It was a terrible time, our heads were in a complete mess."

Although Jack had been delivered with the umbilical cord wrapped around his neck, the results suggested that the placenta had failed.

This meant that when Helen conceived again, she was given different care by doctors.

"I was given aspirin every day, and got extra scans to measure blood flow in the placenta." Her son Ethan was born earlier this year.

The charity says the complexity of the process can also be off-putting for newly bereaved parents and the staff who are helping them.

Some consent forms used in maternity units were up to 25 pages long.

The strain on pathology services can also mean long delays before the post-mortem examination can take place, meaning it can be weeks before the body can be released for a funeral, the charity says.

One woman who spoke to Sands said she was told that because of a shortage of pathologists, there could be a delay of up to six months, and the body would have to be preserved in formalin in the meantime.

Neal Long, chief executive of Sands, said: "While the decision to consent to post-mortem is very much a personal one, high quality pathology and bereavement services are essential to ensure bereaved parents have informed choice, and are not needlessly discouraged from consenting."

He said that in some cases, the information gained at a post-mortem examination could make a big difference to the care available during future pregnancies.

Dr Phil Cox, a consultant perinatal pathologist at the Birmingham Women's Hospital, said post-mortem examination should be available in a "timely fashion" - but this was impossible in some areas.

"Even in the West Midlands, where we are relatively well-funded, the service is constantly very stretched, despite the currently low consent rate."

Currently, the cost of hospital post-mortem examinations are covered by NHS pathology services.

This article is from the BBC News website. � British Broadcasting Corporation, The BBC is not responsible for the content of external internet sites.

Source: http://www.bbc.co.uk/go/rss/int/news/-/news/health-11678271

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